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2005 Journal Entries

June 23rd - Archie is admitted to the Hospital.
June 24th - Thanks for your e-mails and phone calls.
June 26th - Archie is improving.
June 27th - Archie is acting himself.
June 28th - Archie is doing well.
June 29th - Dr. Hayes scheduled a bone marrow aspiration.
June 30th - The bone marrow aspiration brought good news today.
 
July 1st - Archie was very much himself today.
July 11th - Archie was readmitted to the hospital tonight.
July 13th - I am exhausted.
July 14th - Archie started chemotherapy today.
July 17th - Archie started his fourth day of chemotherapy.
July 19th - Archie has been so pleasant the past few days.
July 21st - Little Man continues to be a maverick.
July 25th - Archie may get to come home tomorrow.
July 26th - We came home today. For about three hours.
July 27th - Good news today.
July 31st - Archie spiked a fever Saturday afternoon.
 
August 1st - Back to the operating room.
August 9th - Going to see Dr. Stroud today.
August 21st - The Blue Screen of Death.
August 29th - Archie is doing really well.
 
September 11th - Kit came home from the Hospital.
September 27th - Archie got home from the hospital Saturday morning.
 
January 27th, 2006 - Although each day drags by, each month passes so quickly.
April 25th, 2006 - Meyer Center for Special Children.
July 1st, 2006 - Archie isn’t a baby anymore.

 

Archie was readmitted to the hospital tonight
by Anne Moore
07/11/2005

Just wanted to let everyone know that Archie was readmitted to the hospital tonight. We called the hem/onc’s because Archie’s legs and eyes seemed swollen, and his abdomen was distended and extremely hard. They asked us to bring him in.

Tonight’s blood work confirms that Archie most likely has leukemia. The doctors are going to do more tests tomorrow to confirm the diagnosis, but we are moving forward tonight under the presumption that Archie does have leukemia. The doctor says that it is most likely acute megakaryoblastic leukemia, which is common in children with Down syndrome, but that tomorrow’s tests will confirm that diagnosis. Please don’t research this diagnosis on the Internet because you’ll find mostly negative information with poor prognoses. Because Archie has Down syndrome, and because he developed the disease before turning two years old, his outlook is very positive and his prognosis good.

Archie will undergo more testing tomorrow, and will have surgery Wednesday or Thursday to put a port in his chest through which he’ll receive chemotherapy. He’ll probably begin his treatment Friday or this weekend.

Please remember Archie in your thoughts and prayers. We’d appreciate it so much. We’ll update you when we know more.

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