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2005 Journal Entries

June 23rd - Archie is admitted to the Hospital.
June 24th - Thanks for your e-mails and phone calls.
June 26th - Archie is improving.
June 27th - Archie is acting himself.
June 28th - Archie is doing well.
June 29th - Dr. Hayes scheduled a bone marrow aspiration.
June 30th - The bone marrow aspiration brought good news today.
 
July 1st - Archie was very much himself today.
July 11th - Archie was readmitted to the hospital tonight.
July 13th - I am exhausted.
July 14th - Archie started chemotherapy today.
July 17th - Archie started his fourth day of chemotherapy.
July 19th - Archie has been so pleasant the past few days.
July 21st - Little Man continues to be a maverick.
July 25th - Archie may get to come home tomorrow.
July 26th - We came home today. For about three hours.
July 27th - Good news today.
July 31st - Archie spiked a fever Saturday afternoon.
 
August 1st - Back to the operating room.
August 9th - Going to see Dr. Stroud today.
August 21st - The Blue Screen of Death.
August 29th - Archie is doing really well.
 
September 11th - Kit came home from the Hospital.
September 27th - Archie got home from the hospital Saturday morning.
 
January 27th, 2006 - Although each day drags by, each month passes so quickly.
April 25th, 2006 - Meyer Center for Special Children.
July 1st, 2006 - Archie isn’t a baby anymore.

 

The bone marrow aspiration brought good news today
by Anne Moore
06/30/2005

The bone marrow aspiration brought good news today. The flow cytometry of Archie’s bone marrow confirmed that he has transient myeloproliferative disorder, or TMD. To tell the truth, the results were actually better than the doctors suspected they would be as the percentage of abnormal cells in Archie’s bone marrow is lower than the percentage of abnormal cells in his blood. During the procedure Dr. Hayes also took a tiny piece of Archie’s bone to be studied, and we’ll know tomorrow how that biopsy reads.

John carried Archie to the procedure room in the PICU and my parents and I followed behind. We were permitted to watch the aspiration, which was utterly fascinating. Archie did well with the sedation and actually woke up half way through the procedure and tried to fight off the doctors, champion that he is. The procedure took a little longer than expected because Dr. Hayes had to attempt several times to pull marrow from Archie’s bones. As he wiped his brow with the back of his sleeve the doctor wondered aloud, “Why am I not surprised?” We laughed from the hall. I suppose this is just one more instance during which single-minded Archie decided to do things his own way.

Later in the day one of the hospital physical therapists came to work with Archie. Although he complained abundantly, Archie did sit on his own for the therapist, and also pushed up to the sitting position without assistance. John and I were so pleased we cheered aloud. Archie joined us, too, saying “Yaaaaa,” as he pumped his fists in the air.

We still expect to be in the hospital until Sunday or Monday, but Archie is doing much, much better. His blue eyes sparkle again. After he’s discharged Archie will have weekly visits with Dr. Hayes and his colleagues for some time, and they’ll serve as our primary pediatricians for a while, but we’ll take that. There will always be a higher than average chance that Archie could develop leukemia, but we feel as if we all took a big step in the right direction today.

Thank you again for all of your visits, e-mails, cards, calls and prayers. We appreciate your care and concern so much. Archie is so fortunate to have each of you in his life, as are John and I. Thank you all and I hope to touch base with each of you soon.

I’ll write again tomorrow to update everyone on Archie’s progress. I am so tired.

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