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2003 Journal Links

Oct 26th - Archie is born
Oct 31st - Today, Archie is five days old
Nov 1st - We called the NICU at 3 a.m.
Nov 3rd - Archie's billirubin is down
Nov 4th - Today was Archie's due date
Nov 6th - Yesterday was the most trying day of our lives
Nov 9th - I think we knew that something
Nov 11th - Good day, bad day
Nov 13th - Archie looked great this morning
Nov 16th - If prayers were audible...
Nov 18th - I got to hold my son today
Nov 19th - John is back working again
Nov 20th - Archie slept all day
Nov 22th - I think I know what it’s like to be deaf
Nov 24th - Archie decided to stop fighting the ventilator
Nov 27th - Thanksgiving At the NICU
Nov 28th - John held Archie tonight
Nov 30th - If Archie doesn’t like something, he let’s you know
Dec 3rd - Archie will go for his first plane ride
Dec 5th - Tomorrow Archie will travel to Charleston, to the city where his father was born
Dec 8th - We got up extra early
Dec 10th - Although I spent the entire day at the hospital...
Dec 14th - The doctors attempted to extubate Archie twice
Dec 15th - We’re going to buff ‘em and shine ‘em up
Dec 17th - Santa Claus introduced himself to Archie today
Dec 18th - Archie is doing well
Dec 19th - Archie is continues to do well
Dec 23rd - It is Tuesday morning
Dec 26th - “Are you sure you’re Archie Moore?”

2004 Journal Entries

Jan 4th - John is holding Archie and feeding him his bottle
Jan 11th - We dressed him in a light blue sleeper
Jan 14th - Oh, how I've missed Days of Our Lives
Jan 18th - Patient & Family Satisfaction Improvement Survey
Jan 20th - Archie discovered his hands last weekend
Jan 15th - Babies like this
Jan 29th - Archie Moore is a flirt
Feb 11th - I'm watching Archie study his fist
Feb 23rd - Guess who gained eleven ounces his first week off Portagen?
Mar 2nd - My throat began feeling raw yesterday afternoon
Mar 10th - Tummy Time
Mar 15th - I hate those machines!
Mar 31st - Archie was not interested in his early intervention therapies today
Apr 13th - Well-baby check-up
Apr 21st - Today Archie's world got a little bit bigger
May 7th - It's difficult to write
May 30th - I took Archie to the CDS yesterday
Jun 20th - I know I don't update my journal as frequently as I once did
Jun 29th - We Achie to Budka's
Aug 26th - Archie fights sleep with a fierce tenacity
Sep 12th - Yeah, I know. I need to post more
Oct 26th - Today you are one

 

If Archie doesn’t like something, he let’s everybody know
by Anne Moore
11/30/2003

If Archie doesn’t like something, he let’s everybody know. He gets that from his mother. Yesterday Archie didn’t like his ventilator tube. He disliked it so much that he managed to extubate himself twice during the day and once during the night. “Archie’s as strong as an ox,” Dr. Walker remarked. “But I like him feisty. I wouldn’t want it any other way.”

By correcting Archie’s electrolytes, Dr. Ohning was able to reduce Archie’s carbon dioxide level in his blood from a very high 95 percent to a very normal 40 percent. Consequently Dr. Walker was able to turn the baby’s ventilator down to 21 percent oxygen, or room air. Archie is tolerating the ventilator adjustments very well. So well, in fact, that the doctors hope to wean the little guy off the machine by the end of the week.

“If he can come off the ventilator by the end of the week, we won’t transport him to Charleston,” Dr. Horne explained. “We’ll give him the time he needs to gain as much weight as he can.”

“You’all need to thank this man here,” Dr. Horne continued, gesturing toward Dr. Ohning. “He’s done miraculous things for your son.”

In case he needs it, Dr. Horne is scheduling a surgery date for Archie at MUSC in two weeks time. “If he’s doing well, we’ll cancel. If not, we’ll transport.”

Today Archie is doing well. Really well, in fact. He looks fat and happy, and is his familiar charming self, a side of him we haven’t seen in a while. A blood culture revealed a staph infection, which doctors are currently treating with antibiotics. A urine culture revealed a urinary tract infection, which is also being treated with antibiotics. Both infections would have disqualified the baby from surgery this week, Dr. Horne explained. But neither infection seems to be keeping the little man down.

“It isn’t often that I get beat up by a baby,” Jill, one of Archie’s nurses, told John and me when she came to the waiting room to get us after she finished putting a new PICC line in Archie, this time in his scalp. “But Archie gave me a run for my money. And he managed to extubate himself again in the process.”

Jill had wrapped Archie up in a blanket as if it were a straight jacket after she finished inserting the new PICC line. Just the same, my little man was still able to free one tiny hand from the confines of the blanket, his fingers flirting again with the ventilator tube. Keith, Archie’s respiratory therapist, stood watchfully by. “I’m afraid he’s going to do it again,” he worried aloud.

Archie’s flirtation with mischief and Keith’s resulting vigilance continued all day Sunday until another close call forced the baby’s nurse to bind his arms with restraints tied to his crib slats. The little man lay in his bed, the Jack Nicholson of the infant’s version of “One Flew Over the Cuckoo’s Nest,” his wild hair standing up all over his head, trying to free his arms. His father and I stood by watching, proud as could be, trying not to stifle our giggles.

“There’s something very special about him,” Dava, Archie’s nurse, observed.

John and I couldn’t agree more.

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