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2003 Journal Links

Oct 26th - Archie is born
Oct 31st - Today, Archie is five days old
Nov 1st - We called the NICU at 3 a.m.
Nov 3rd - Archie's billirubin is down
Nov 4th - Today was Archie's due date
Nov 6th - Yesterday was the most trying day of our lives
Nov 9th - I think we knew that something
Nov 11th - Good day, bad day
Nov 13th - Archie looked great this morning
Nov 16th - If prayers were audible...
Nov 18th - I got to hold my son today
Nov 19th - John is back working again
Nov 20th - Archie slept all day
Nov 22th - I think I know what it’s like to be deaf
Nov 24th - Archie decided to stop fighting the ventilator
Nov 27th - Thanksgiving At the NICU
Nov 28th - John held Archie tonight
Nov 30th - If Archie doesn’t like something, he let’s you know
Dec 3rd - Archie will go for his first plane ride
Dec 5th - Tomorrow Archie will travel to Charleston, to the city where his father was born
Dec 8th - We got up extra early
Dec 10th - Although I spent the entire day at the hospital...
Dec 14th - The doctors attempted to extubate Archie twice
Dec 15th - We’re going to buff ‘em and shine ‘em up
Dec 17th - Santa Claus introduced himself to Archie today
Dec 18th - Archie is doing well
Dec 19th - Archie is continues to do well
Dec 23rd - It is Tuesday morning
Dec 26th - “Are you sure you’re Archie Moore?”

2004 Journal Entries

Jan 4th - John is holding Archie and feeding him his bottle
Jan 11th - We dressed him in a light blue sleeper
Jan 14th - Oh, how I've missed Days of Our Lives
Jan 18th - Patient & Family Satisfaction Improvement Survey
Jan 20th - Archie discovered his hands last weekend
Jan 15th - Babies like this
Jan 29th - Archie Moore is a flirt
Feb 11th - I'm watching Archie study his fist
Feb 23rd - Guess who gained eleven ounces his first week off Portagen?
Mar 2nd - My throat began feeling raw yesterday afternoon
Mar 10th - Tummy Time
Mar 15th - I hate those machines!
Mar 31st - Archie was not interested in his early intervention therapies today
Apr 13th - Well-baby check-up
Apr 21st - Today Archie's world got a little bit bigger
May 7th - It's difficult to write
May 30th - I took Archie to the CDS yesterday
Jun 20th - I know I don't update my journal as frequently as I once did
Jun 29th - We Achie to Budka's
Aug 26th - Archie fights sleep with a fierce tenacity
Sep 12th - Yeah, I know. I need to post more
Oct 26th - Today you are one

 

It's difficult to find time to sit down and write when you're six-month-old wants you to play with him
by Anne Moore
05/07/2004

It's difficult to find time to sit down and write when you're six-month-old wants you to play with him. Especially when the sixth-month-old obviously adores you and likes nothing more once he's tired himself out playing, playing, playing than to be held tight against your chest, close to your face, so that he can touch your cheeks, eyes, nose, mouth. He smiles then, this six-month-old, and giggles and the sounds he makes are like musical notes that encircle mother and son like a magical spell of happiness before they float away and alight all the corners of the room.

Just this week Archie began holding his arms out wide, reaching for me, to indicate his desire to be held. At first I thought I was reading too much into the gesture, but by bedtime last night I knew that Archie truly was communicating with me. What a bright boy I have.

And apparently he's also a healthy boy. I sometimes wondered if I would ever be able to use that adjective to describe my son. Last week John and I took Archie to visit Dr. Stroud, his hematologist/oncologist. A CBC confirmed that Archie's white blood cell count was within normal range and that he had no blasts in his blood. "I read the slide myself," Dr. Stroud told us. John and I smiled at each other. We smiled at the doctor, too. I'm sure my sigh of relief (yes, there really is such a thing) was audible. "Let's bring him back in a month and we'll take another look," Dr. Stroud said, his hands held, fingers interlaced, in front of his body below his waist. "And then I'd like to see him every two months after that. But if something were going to come of the transient leukemia, it would have most likely already happened."

Yesterday Archie's nurse discharged him from her care. "He's doing very well," she told me smiling. "He doesn't need me anymore." Before she left she stood a while, holding her computer and scale, watching Archie play on his blanket. "I'll never see you again," she said to him.

Archie smiled in response while I answered for him. "I'll see you around, Miss Cheryl. But I'll be bigger then and you'll be so happy to see me."

"He's big now, for him," she told me reassuringly as I walked her to the door for the last time.

During his baths Archie likes to stretch his legs out straight and solidly position his feet in the corners of the tub. After he does this he sighs loudly and turns his head so that he can watch me in the bathroom mirror as I bath him. Last night, though, Archie decided he would rather stand during his bath. I tried to force him to sit down, but he wouldn't, so I had to ask his father to come help me and support Archie as he stood, soap suds running down his body, long and thin, and smiling at his reflection in the mirror.

"He's standing, Mom!" Archie's physical therapist exclaimed to me, laughing, this morning during the baby's weekly session. "He is doing so well!" The physical therapist then rattled off a list of Archie's accomplishments during the session. Archie turned his face toward the physical therapist and smiled. He lifted his hands then to explore the therapist's face, curious little fingers touching here and there. "Nope!" the therapist said, laughing. "No low muscle tone here! He's come so far since I first met him," he marveled aloud.

"I know it," I responded.

Archie slept through the night yesterday, as he's been doing consistently for some time. I slept, too, all the way through, for the first time since October.

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