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2003 Journal Links

Oct 26th - Archie is born
Oct 31st - Today, Archie is five days old
Nov 1st - We called the NICU at 3 a.m.
Nov 3rd - Archie's billirubin is down
Nov 4th - Today was Archie's due date
Nov 6th - Yesterday was the most trying day of our lives
Nov 9th - I think we knew that something
Nov 11th - Good day, bad day
Nov 13th - Archie looked great this morning
Nov 16th - If prayers were audible...
Nov 18th - I got to hold my son today
Nov 19th - John is back working again
Nov 20th - Archie slept all day
Nov 22th - I think I know what it’s like to be deaf
Nov 24th - Archie decided to stop fighting the ventilator
Nov 27th - Thanksgiving At the NICU
Nov 28th - John held Archie tonight
Nov 30th - If Archie doesn’t like something, he let’s you know
Dec 3rd - Archie will go for his first plane ride
Dec 5th - Tomorrow Archie will travel to Charleston, to the city where his father was born
Dec 8th - We got up extra early
Dec 10th - Although I spent the entire day at the hospital...
Dec 14th - The doctors attempted to extubate Archie twice
Dec 15th - We’re going to buff ‘em and shine ‘em up
Dec 17th - Santa Claus introduced himself to Archie today
Dec 18th - Archie is doing well
Dec 19th - Archie is continues to do well
Dec 23rd - It is Tuesday morning
Dec 26th - “Are you sure you’re Archie Moore?”

2004 Journal Entries

Jan 4th - John is holding Archie and feeding him his bottle
Jan 11th - We dressed him in a light blue sleeper
Jan 14th - Oh, how I've missed Days of Our Lives
Jan 18th - Patient & Family Satisfaction Improvement Survey
Jan 20th - Archie discovered his hands last weekend
Jan 15th - Babies like this
Jan 29th - Archie Moore is a flirt
Feb 11th - I'm watching Archie study his fist
Feb 23rd - Guess who gained eleven ounces his first week off Portagen?
Mar 2nd - My throat began feeling raw yesterday afternoon
Mar 10th - Tummy Time
Mar 15th - I hate those machines!
Mar 31st - Archie was not interested in his early intervention therapies today
Apr 13th - Well-baby check-up
Apr 21st - Today Archie's world got a little bit bigger
May 7th - It's difficult to write
May 30th - I took Archie to the CDS yesterday
Jun 20th - I know I don't update my journal as frequently as I once did
Jun 29th - We Achie to Budka's
Aug 26th - Archie fights sleep with a fierce tenacity
Sep 12th - Yeah, I know. I need to post more
Oct 26th - Today you are one

 

Oh, how I've missed Days of Our Lives
by Anne Moore
01/14/2004

Oh, how I've missed Days of Our Lives! Always working, I haven't had a chance to watch the soap opera since spring semester of my senior year at Kenyon when exchanging predictable melodrama for the poetry of Robert Frost felt like a fair trade. Today one of the actors has just received upsetting news regarding the baby she's carrying. Her doctor mentioned waiting for the "ultrasound results." Even though the writers' have their medical procedures slightly confused, I'm still compelled to shake my head. "If she only knew," I utter under my breath.

Archie awakes. He is lying in the bassinette John and I have set up in our keeping room. He stirs and I go to him. Careful not to pick the baby up underneath his arms so as not to stretch his healing incision and breastbone, I scoop the little man against my chest. As my face nears his, he forms a perfect "o" with his lips and coos. Not bad for a baby whose development should be delayed due to the many weeks he spent sedated, languishing on the ventilator. "Right back at you, Archie!" I say in response. "Ooooooo, baby boy. Oooooo…"

Today Archie is eating better than he ever has before. He attacks his bottle without hesitation and sucks down his formula as if he's finally figured out what this feeding business is all about. I tell the nurse who calls me from Archie's pediatrician's office all this, only she doesn't seem to understand the extent of my enthusiasm. "Just make sure he has several wet diapers and frequent bowel movements," she advises.

"Of course I will," I respond.

"When will Home Health be out to check his weight?" she asked.

"Tomorrow," I offer. "The woman said sometime tomorrow afternoon."

"Ok, I'll talk to you then," the nurse says and then hangs up. I sigh as I put down the phone. When I find myself resenting the checks and balances system the baby's doctors have crafted to monitor his progress, I try to remind myself that it is all intended to protect Archie. This nurse doesn't know that I spend every moment of every day worrying about my baby's wellbeing and doing what I can to see that he thrives under my care.

This afternoon, though, it's just my son and I. After the baby finishes his bottle and falls asleep in my arms, I place him back in his bassinette. I pour a cup of coffee and consult my calendar. The BabyNet coordinator is supposed to get back to me by the end of this week about setting up Archie's first at-home visit with a therapist who will work on the baby's motor skills. In two weeks Archie and I have appointments to see the hematologist and cardiologist. I put my calendar away and return to the couch, hoping to read a chapter or two in my book before Archie wakes up again and wants to play with me. My eyes grow heavier with each page. The actors' voices sound loud and slurry now as sleep envelops me, my senses dimming. Archie's whine suddenly snaps me back from the void. Promises to keep, I think as I get up off the couch and move toward the bassinette. Miles to go before I sleep, miles to go before I sleep.

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